In the next five years we will:
- Monitor and support participation in BRC research especially the effects of PPIE in our Research Themes.
- Monitor and support our SLAM patient research volunteer list (Consent for Contact) and increase participation of under-represented groups (especially in relation to race and gender but where possible we will also monitor all protected characteristics).
- Explore digital health applications especially the acceptability of South London and Maudsley’s Beth app to support care-programming.
- Explore the acceptability of clinical data sharing for research purposes.
- Co-develop outcome and process measures for early-stage clinical trials.
- Continue evaluating advisory groups to discover their effectiveness. This will include investigations of the minutes of meetings, feedback from researchers and interviews with members of our advisory groups and service user researchers.
We will use mixed methods approaches including qualitative studies, surveys, psychometrics, discrete choice experiments and potentially clinical trials methods to assess new outcome measures. Outcomes include educational material for all BRCs and peer reviewed publications. Monitoring participation in these studies will mean we can respond to emerging problems such as decreased diversity in C4C.
Examples of service user-led (the lead for a project has lived experience of mental health difficulties) and PPIE involvement research
Current research underway:
- A qualitative study exploring why women and Asian men say no to registering on Consent for Contact register.
- A qualitative study investigating the experiences of service users and clinicians who have or have not used Beth which is a digital toolkit for mental health support.
- A multi-criterion decision modelling (MCDM) study, to understand the importance of relevant but distinct outcomes of interest for measuring treatment benefit for cognitive remediation therapy, from the point of view of service users and clinicians.
- An investigation of mental health service users’ views on the acceptability of clinical data sharing amongst researchers
- Following on from the data sharing qualitative study investigating the acceptability of anonymisation, potential research benefit and data sharing, a discrete choice experiment (DCE) will be developed.
- A systematic review of evaluations of PPI involvement to assess models that have been successful and provide a blueprint for our BRC plans.
- A comparison of the models for PPIE involvement in different research themes to identify barriers and successful impact
Programme of Activities and Research
Strategic Oversight
Service users have been involved in developing BRC strategy, future direction, and the funding application
Supporting research through providing resources
We host a range of advisory groups, as well as providing training and guidance
Leadership and Lines of Reporting
Strategic management, resources and governance with involvement of service users
Monitoring, reviewing, reporting and measuring
How we will review and measure our success and impact
Public engagement
Engaging national and local publics with our research and with mental health more broadly
