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Selected Patient & Public Involvement publications


Please see below a list of selected publications from the Patient & Public Involvement team:

Bowie, C. R., Bell, M. D., Fiszdon, J. M., Johannesen, J. K., Lindenmayer, J.-P., McGurk, S. R., . . . Twamley, E. W. (2020). Cognitive remediation for schizophrenia: An expert working group white paper on core techniques. Schizophrenia research, 215, 49-53.

Cella, M., Bodnar, M., Lepage, M., Malla, A., Joober, R., Iyer, S., . . . Preti, A. (2020). Investigating subjective cognitive complaints in psychosis: Introducing the brief scale to Investigate cognition in schizophrenia (SSTICS-Brief). Cognitive Neuropsychiatry, 25(3), 190-200.

Craven, M. P., Andrews, J. A., Lang, A. R., Simblett, S. K., Bruce, S., Thorpe, S., . . . Consortium, R.-C. (2020). Informing the Development of a Digital Health Platform Through Universal Points of Care: Qualitative Survey Study. JMIR Form Res, 4(11), e22756. doi:10.2196/22756

de Girolamo, G., Barattieri di San Pietro, C., Bulgari, V., Dagani, J., Ferrari, C., Hotopf, M., . . . Myin‐Germeys, I. (2020). The acceptability of real‐time health monitoring among community participants with depression: A systematic review and meta‐analysis of the literature. Depression and Anxiety, 37(9): 885-897.

Greer, B., Taylor, R. W., Cella, M., Stott, R., & Wykes, T. (2020). The contribution of dynamic risk factors in predicting aggression: A systematic review including inpatient forensic and non-forensic mental health services. Aggression and Violent Behavior, 101433.

Hermans, K. S., Myin-Germeys, I., Gayer-Anderson, C., Kempton, M. J., Valmaggia, L., McGuire, P., . . . Morgan, C. (2020). Elucidating negative symptoms in the daily life of individuals in the early stages of psychosis. Psychological medicine, 1-11.

Laker, C., Cella, M., Callard, F., & Wykes, T. (2020). The impact of ward climate on staff perceptions of barriers to research‐driven service changes on mental health wards: A cross‐sectional study. Journal of Psychiatric and Mental Health Nursing, 27(3), 281-295.

Moreno, C., Wykes, T., Galderisi, S., Nordentoft, M., Crossley, N., Jones, N., . . . Carr, S. (2020). How mental health care should change as a consequence of the COVID-19 pandemic. The Lancet Psychiatry.

Polhemus, A. M., Novák, J., Ferrao, J., Simblett, S., Radaelli, M., Locatelli, P., . . . Burke, P. (2020). Human-Centered Design Strategies for Device Selection in mHealth Programs: Development of a Novel Framework and Case Study. JMIR mHealth and uHealth, 8(5), e16043.

Seccomandi, B., Tsapekos, D., Newbery, K., Wykes, T., & Cella, M. (2020). A systematic review of moderators of cognitive remediation response for people with schizophrenia. Schizophr Res Cogn, 19, 100160. doi:10.1016/j.scog.2019.100160

Simblett, S., Matcham, F., Curtis, H., Greer, B., Polhemus, A., Novák, J., . . . Narayan, V. (2020). Patients’ Measurement Priorities for Remote Measurement Technologies to Aid Chronic Health Conditions: Qualitative Analysis. JMIR mHealth and uHealth, 8(6), e15086.

Simblett, S. K., Biondi, A., Bruno, E., Ballard, D., Stoneman, A., Lees, S., . . . consortium, R.-C. (2020). Patients' experience of wearing multimodal sensor devices intended to detect epileptic seizures: A qualitative analysis. Epilepsy Behav, 102, 106717. doi:10.1016/j.yebeh.2019.106717

Tan, S., Zhu, X., Fan, H., Tan, Y., Yang, F., Wang, Z., . . . Li, Z. (2020). Who will benefit from computerized cognitive remediation therapy? Evidence from a multisite randomized controlled study in schizophrenia. Psychological medicine, 50(10), 1633-1643.

Torous, J., & Wykes, T. (2020). Opportunities from the coronavirus disease 2019 pandemic for transforming psychiatric care with telehealth. JAMA psychiatry.

Tsapekos, D., Seccomandi, B., Mantingh, T., Cella, M., Wykes, T., & Young, A. H. (2020). Cognitive enhancement interventions for people with bipolar disorder: A systematic review of methodological quality, treatment approaches, and outcomes. Bipolar Disord, 22(3), 216-230. doi:10.1111/bdi.12848

Tsapekos, D., Strawbridge, R., Cella, M., Wykes, T., & Young, A. H. (2020). Do we really need a “new” cognitive therapy for bipolar disorder? Paradigm refinements and treatment mechanisms for cognitive remediation. Bipolar Disorders, 22(3), 213-215.

Tsapekos, D., Strawbridge, R., Mantingh, T., Cella, M., Wykes, T., & Young, A. H. (2020). Role of cognitive reserve in cognitive variability in euthymic individuals with bipolar disorder: cross-sectional cluster analysis. BJPsych Open, 6(6).

The side effects of service changes: exploring the longitudinal impact of participation in a randomised controlled trial (DOORWAYS) on staff perceptions of barriers to change. C Laker, M Cella, D Agbediro, F Callard, T Wykes. BMC psychiatry 19 (1), 1-12

Remote assessment of disease and relapse in major depressive disorder (RADAR-MDD): a multi-centre prospective cohort study protocol. F Matcham, CB di San Pietro, V Bulgari, G De Girolamo, R Dobson, ... BMC psychiatry 19 (1), 1-11

Blending active and passive digital technology methods to improve symptom monitoring in early psychosis. M Cella, Z He, C Killikelly, Ł Okruszek, S Lewis, T Wykes.Early intervention in psychiatry 13 (5), 1271-1275

Exploring patients’ and carers’ views about the clinical use of ketamine to inform policy and practical decisions: mixed-methods study. S Jilka, C Murray, A Wieczorek, H Griffiths, T Wykes, R McShane. BJPsych open 5 (5)

Emotional outcomes in clinically isolated syndrome and early phase multiple sclerosis: a systematic review and meta-analysis. A Rintala, F Matcham, M Radaelli, G Locafaro, S Simblett, ... Journal of psychosomatic research 124, 109761

Towards the design of ethical standards related to digital mental health and all its applications. T Wykes, J Lipshitz, SM Schueller. Current Treatment Options in Psychiatry 6 (3), 232-242

Patient perspectives on the acceptability of mHealth technology for remote measurement and management of epilepsy: a qualitative analysis. SK Simblett, E Bruno, S Siddi, F Matcham, L Giuliano, JH López, A Biondi, ... Epilepsy & Behavior 97, 123-129

Engaging across dimensions of diversity: A cross-national perspective on mHealth tools for managing relapsing remitting and progressive multiple sclerosis. SK Simblett, J Evans, B Greer, H Curtis, F Matcham, M Radaelli, P Mulero, ... Multiple sclerosis and related disorders 32, 123-132

Liberal acceptance bias, momentary aberrant salience, and psychosis: an experimental experience sampling study. U Reininghaus, M Oorschot, S Moritz, C Gayer-Anderson, MJ Kempton, ... Schizophrenia bulletin 45 (4), 871-882

Why is change a challenge in acute mental health wards? A cross‐sectional investigation of the relationships between burnout, occupational status and nurses’ perceptions of.. C Laker, M Cella, F Callard, T Wykes. International journal of mental health nursing 28 (1), 190-198

Predicting inpatient aggression in forensic services using remote monitoring technology: Qualitative study of staff perspectives. B Greer, K Newbery, M Cella, T Wykes. Journal of medical internet research 21 (9), e15620

Why reviewing apps is not enough: transparency for trust (T4T) principles of responsible health app marketplaces. T Wykes, S Schueller. Journal of medical Internet research 21 (5), e12390

Barriers to and facilitators of engagement With mHealth technology for remote measurement and management of depression: Qualitative analysis. S Simblett, F Matcham, S Siddi, V Bulgari, CB di San Pietro, JH López, ... JMIR mHealth and uHealth 7 (1), e11325

Digital exclusion among mental health service users: qualitative investigation. B Greer, D Robotham, S Simblett, H Curtis, H Griffiths, T Wykes. Journal of medical Internet research 21 (1), e11696

The nuts and bolts of cognitive remediation: exploring how different training components relate to cognitive and functional gains. M Cella, T Wykes. Schizophrenia research 203, 12-16

Allan, S., Cella, M., Wykes, T., & Perez, J. (2018). Cognitive Remediation Therapy for Psychotic Major Depressive Disorder. Prim Care Companion CNS Disord, 20(3). doi:10.4088/PCC.17l02180

Birchwood, M., Dunn, G., Meaden, A., Tarrier, N., Lewis, S., Wykes, T., . . . Peters, E. (2018). The COMMAND trial of cognitive therapy to prevent harmful compliance with command hallucinations: predictors of outcome and mediators of change. Psychol Med, 48(12), 1966-1974. doi:10.1017/S0033291717003488

Bruno, E., Simblett, S., Lang, A., Biondi, A., Odoi, C., Schulze-Bonhage, A., . . . Consortium, R.-C. (2018). Wearable technology in epilepsy: The views of patients, caregivers, and healthcare professionals. Epilepsy Behav, 85, 141-149. doi:10.1016/j.yebeh.2018.05.044

Cella, M., Okruszek, Ł., Lawrence, M., Zarlenga, V., He, Z., & Wykes, T. (2018). Using wearable technology to detect the autonomic signature of illness severity in schizophrenia. Schizophrenia research, 195, 537-542.

Edwards, C. J., Cella, M., Emsley, R., Tarrier, N., & Wykes, T. H. M. (2018). Exploring the relationship between the anticipation and experience of pleasure in people with schizophrenia: An experience sampling study. Schizophr Res, 202, 72-79. doi:10.1016/j.schres.2018.06.040

Harvey, P. D., McGurk, S. R., Mahncke, H., & Wykes, T. (2018). Controversies in computerized cognitive training. Biological Psychiatry: Cognitive Neuroscience and Neuroimaging, 3(11), 907-915.

Reeder, C., Huddy, V., Cella, M., Taylor, R., Greenwood, K., Landau, S., & Wykes, T. (2017). A new generation computerised metacognitive cognitive remediation programme for schizophrenia (CIRCuiTS): a randomised controlled trial. Psychological medicine, 47(15), 2720-2730.

Simblett, S., Greer, B., Matcham, F., Curtis, H., Polhemus, A., Ferrao, J., . . . Wykes, T. (2018). Barriers to and Facilitators of Engagement With Remote Measurement Technology for Managing Health: Systematic Review and Content Analysis of Findings. J Med Internet Res, 20(7), e10480. doi:10.2196/10480

Torous, J., Firth, J., Huckvale, K., Larsen, M. E., Cosco, T. D., Carney, R., . . . Christensen, H. (2018). The Emerging Imperative for a Consensus Approach Toward the Rating and Clinical Recommendation of Mental Health Apps. J Nerv Ment Dis, 206(8), 662-666. doi:10.1097/NMD.0000000000000864

Wykes, T., Csipke, E., Williams, P., Koeser, L., Nash, S., Rose, D., . . . McCrone, P. (2018). Improving patient experiences of mental health inpatient care: a randomised controlled trial. Psychol Med, 48(3), 488-497. doi:10.1017/S003329171700188X

Wykes, T., Joyce, E., Velikonja, T., Watson, A., Aarons, G., Birchwood, M., . . . Upthegrove, R. (2018). The CIRCuiTS study (Implementation of cognitive remediation in early intervention services): protocol for a randomised controlled trial. Trials, 19(1), 183. doi:10.1186/s13063-018-2553-3

Effects of cognitive remediation on negative symptoms dimensions: exploring the role of working memory. M Cella, D Stahl, S Morris, RSE Keefe, MD Bell, T Wykes. Psychological medicine 47 (15), 2593-2601

What side effects are problematic for patients prescribed antipsychotic medication? The Maudsley Side Effects (MSE) measure for antipsychotic medication. T Wykes, J Evans, C Paton, TRE Barnes, D Taylor, R Bentall, B Dalton, Psychological medicine 47 (13), 2369-2378

National funding for mental health research in Finland, France, Spain and the United Kingdom. JB Hazo, C Gandré, M Leboyer, C Obradors-Tarragó, S Belli, D McDaid, European Neuropsychopharmacology 27 (9), 892-899

What proportion of patients with psychosis is willing to take part in research? A mental health electronic case register analysis. R Patel, S Oduola, F Callard, T Wykes, M Broadbent, R Stewart, TKJ Craig, BMJ open 7 (3)

Modeling the interplay between psychological processes and adverse, stressful contexts and experiences in pathways to psychosis: an experience sampling study. A Klippel, I Myin-Germeys, UY Chavez-Baldini, KJ Preacher, M Kempton, Schizophrenia bulletin 43 (2), 302-315

The COMMAND trial of cognitive therapy to prevent harmful compliance with command hallucinations. M Birchwood, G Dunn, A Meaden, N Tarrier, S Lewis, T Wykes, L Davies,

Improving adherence to web-based and mobile technologies for people with psychosis: systematic review of new potential predictors of adherence. C Killikelly, Z He, C Reeder, T Wykes. JMIR mHealth and uHealth 5 (7), e94

Modafinil and cognitive enhancement in schizophrenia and healthy volunteers: the effects of test battery in a randomised controlled trial. J Lees, PG Michalopoulou, SW Lewis, S Preston, C Bamford, T Collier, Psychological medicine 47 (13), 2358-2368

The optimisation of experience sampling protocols in people with schizophrenia. CJ Edwards, M Cella, N Tarrier, T Wykes. Psychiatry research 244, 289-29

Using digital notifications to improve attendance in clinic: systematic review and meta-analysis. D Robotham, S Satkunanathan, J Reynolds, D Stahl, T Wykes. BMJ open 6 (10)

Psychological processes underlying the association between childhood trauma and psychosis in daily life: an experience sampling study. U Reininghaus, C Gayer-Anderson, L Valmaggia, MJ Kempton, M Calem, Psychological medicine 46 (13), 2799-2813

A question of time: a study of time use in people with schizophrenia. M Cella, C Edwards, T Wykes. Schizophrenia research 176 (2-3), 480-484

Facilitating mental health research for patients, clinicians and researchers: a mixed-method study. D Robotham, S Waterman, S Oduola, C Papoulias, T Craig, T Wykes. BMJ open 6 (8), e011127

Development and validation of ‘SURE’: A patient reported outcome measure (PROM) for recovery from drug and alcohol dependence. J Neale, S Vitoratou, E Finch, P Lennon, L Mitcheson, D Panebianco, Drug and alcohol dependence 165, 159-167. 

Defining continuity of care from the perspectives of mental health service users and professionals: an exploratory, comparative study. A Sweeney, J Davies, S McLaren, M Whittock, F Lemma, R Belling. Health Expectations 19 (4), 973-987

Following the Francis report: investigating patient experience of mental health in-patient care. E Csipke, P Williams, D Rose, L Koeser, P McCrone, T Wykes, T Craig. The British Journal of Psychiatry 209 (1), 35-39

Service user and carer priorities in a Biomedical Research Centre for mental health. D Robotham, T Wykes, D Rose, L Doughty, S Strange, J Neale, M Hotopf. Journal of Mental Health 25 (3), 185-188

Stress sensitivity, aberrant salience, and threat anticipation in early psychosis: an experience sampling study. U Reininghaus, MJ Kempton, L Valmaggia, TKJ Craig, P Garety, Schizophrenia bulletin 42 (3), 712-722

The feasibility and acceptability to service users of CIRCuiTS, a computerized cognitive remediation therapy programme for schizophrenia. C Reeder, V Pile, P Crawford, M Cella, D Rose, T Wykes, A Watson, Behavioural and Cognitive Psychotherapy 44 (3), 288-305

Virtual shopping: A viable alternative to direct assessment of real life function? KE Greenwood, R Morris, V Smith, AM Jones, D Pearman, T Wykes. Schizophrenia research 172 (1-3), 206-210

Group cognitive remediation for schizophrenia: exploring the role of therapist support and metacognition. M Cella, C Reeder, T Wykes. Psychology and Psychotherapy: Theory, Research and Practice 89 (1), 1-14

Predicting psychiatric inpatient costs. R Sabes-Figuera, P McCrone, E Csipke, TKJ Craig, D Rose, B Sharma, Social psychiatry and psychiatric epidemiology 51 (2), 303-308

Sense and readability: participant information sheets for research studies. L Ennis, T Wykes. The British Journal of Psychiatry 208 (2), 189-194

Impact on the individual: what do patients and carers gain, lose and expect from being involved in research? J Ashcroft, T Wykes, J Taylor, A Crowther, G Szmukler. Journal of Mental Health 25 (1), 28-35

Emerging consensus on measuring addiction recovery: findings from a multi-stakeholder consultation exercise. J Neale, D Panebianco, E Finch, J Marsden, L Mitcheson, D Rose, Drugs: education, prevention and policy 23 (1), 31-40

Neale J, Vitoratou S, Finch E, Lennon P, Mitcheson L, Panebianco D, Rose D, Strang J, Wykes T, Marsden J. Development and validation of ‘SURE’: A patient reported outcome measure (PROM) for recovery from drug and alcohol dependence. Drug and alcohol dependence. 2016 Aug 1;165:159-67.

Do we still have a digital divide in mental health? A five-year survey follow-up. D Robotham, S Satkunanathan, L Doughty, T Wykes. Journal of medical Internet research 18 (11), e309

Tackling social cognition in schizophrenia: a randomized feasibility trial. R Taylor, M Cella, E Csipke, C Heriot-Maitland, C Gibbs, T Wykes. Behavioural and Cognitive Psychotherapy 44 (3), 306-317

2015

Consenting for contact? Linking electronic health records to a research register within psychosis services, a mixed method study. Robotham, D., Riches, S., Perdue, I., Callard, F., Craig, T., Rose, D. & Wykes, T. (14 May 2015) In : BMC HEALTH SERVICES RESEARCH. 15, 1, 199

Linking a research register to clinical records in older adults' mental health services: a mixed-methods study. Robotham, D., Evans, J., Watson, A., Perdue, I., Craig, T., Rose, D. & Wykes, T. (1 April 2015) In : Alzheimer's research & therapy. 7, 15

Electronic personal health records for people with severe mental illness; a feasibility study. Robotham, D., Mayhew, M., Rose, D. & Wykes, T. (2015) In : BMC Psychiatry. 15, 192

Emerging consensus on measuring addiction recovery: Findings from a multi-stakeholder consultation exercise. Neale, J., Panebianco, D., Finch, E., Marsden, J., Mitcheson, L., Rose, D., Strang, J. & Wykes, T. (22 Oct 2015) In : Drugs: Education, Prevention and Policy.

"You're all going to hate the word 'recovery' by the end of this": Service users' views of measuring addiction recovery. Neale, J., Tompkins, C., Wheeler, C., Finch, E., Marsden, J., Mitcheson, L., Rose, D., Wykes, T. & Strang, J. (1 Jan 2015) In : Drugs: Education, Prevention and Policy. 22, 1, p. 26-34

Blending qualitative and quantitative research methods to optimize patient reported outcome measures (PROMs). Neale, J. & Strang, J. 2015 In : Addiction.

2014

Staff and service users' views on a 'Consent for Contact' research register within psychosis services: a qualitative study. Papoulias, C., Robotham, D., Drake, G., Rose, D. & Wykes, T. (24 Dec 2014) In : BMC Psychiatry. 14, , 377

Collaborative development of an electronic Personal Health Record for people with severe and enduring mental health problems. Ennis, L., Robotham, D., Denis, M., Pandit, N., Newton, D., Rose, D. & Wykes, T. (18 Nov 2014) In : BMC Psychiatry. 14, 305

How should we measure addiction recovery? Analysis of service provider perspectives using online Delphi groups. Neale, J., Finch, E., Marsden, J., Mitcheson, L., Rose, D., Strang, J., Tompkins, C., Wheeler, C. & Wykes, T. (1 Jan 2014) In : Drugs: Education, Prevention and Policy. 21, 4, p. 310-323

2013

Development and evaluation of a de-identification procedure for a case register sourced from mental health electronic records. Fernandes, A., Cloete, D., Broadbent, M., Hayes, R., Chang, C-K., Jackson, R., Roberts, A., Tsang, J., Soncul, M., Liebscher, J., Stewart, R. & Callard, F. (11 July 2013) In : BMC medical informatics and decision making. 13, 71

2012

Close to the bench as well as at the bedside: involving service users in all phases of translational research. Callard, F., Rose, D. & Wykes, T. (Dec 2012) In : Health Expectations. 15, 4, p. 389-400

2011

Selecting outcome measures in mental health: the views of service users. Crawford, M. J., Robotham, D., Thana, L., Patterson, S., Weaver, T., Barber, R., Wykes, T. & Rose, D. Aug 2011 In : Journal of Mental Health. 20, 4, p. 336 – 346

Rapid progress or lengthy process? electronic personal health records in mental health. Ennis, L., Rose, D., Callard, F., Denis, M. & Wykes, T. (26 Jul 2011) In : Bmc Psychiatry. 11, 117